Comments on: Medicine’s Ivory Tower Meets the Information Age http://ideonexus.com/2008/06/23/medicines-ivory-tower-meets-the-information-age/ Mon, 02 Jan 2012 05:43:39 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Mr. Gunn http://ideonexus.com/2008/06/23/medicines-ivory-tower-meets-the-information-age/comment-page-1/#comment-4242 Mr. Gunn Mon, 30 Jun 2008 19:09:46 +0000 http://ideonexus.com/?p=1466#comment-4242 The issue of my DNA = My Data is definitely a big one. Another thing missed is that there's tons of non-disease related information,such as ancestry, revealed by these tests, so making the doctors the gatekeepers is absurd. I don't think the doctors even want to be the gatekeepers. What's happening, I think, is that some old regulatory dinosaur has lumped thses tests in with previous direct to consumer genetic tests which used spurious methods. Eventually, someone will clue the regulator in to the new technology and how it's different, and this will all pass. Hopefully the scammers will have left by then, too. The issue of my DNA = My Data is definitely a big one. Another thing missed is that there’s tons of non-disease related information,such as ancestry, revealed by these tests, so making the doctors the gatekeepers is absurd. I don’t think the doctors even want to be the gatekeepers. What’s happening, I think, is that some old regulatory dinosaur has lumped thses tests in with previous direct to consumer genetic tests which used spurious methods. Eventually, someone will clue the regulator in to the new technology and how it’s different, and this will all pass. Hopefully the scammers will have left by then, too.

]]> By: ClintJCL http://ideonexus.com/2008/06/23/medicines-ivory-tower-meets-the-information-age/comment-page-1/#comment-3871 ClintJCL Mon, 23 Jun 2008 16:13:16 +0000 http://ideonexus.com/?p=1466#comment-3871 My concern is based on privacy. I don't want some company selling my data, or "accidentally" losing it when a "laptop containing millions of customers of data is accidentally left in a vehicle that got robbed". They should be forced to have major security and liability. But other than that, I totally agree. Protectionism. My data. WANT! My concern is based on privacy. I don’t want some company selling my data, or “accidentally” losing it when a “laptop containing millions of customers of data is accidentally left in a vehicle that got robbed”. They should be forced to have major security and liability.

But other than that, I totally agree. Protectionism. My data. WANT!

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